Lupus
Meet Lupus Warrior: Monique
In the summer of 2010, I heard three words that would instantly change the trajectory of my life “YOU HAVE LUPUS.” My diagnosis came just over 2 months before my wedding day. My life was filled with complications, trepidation, and confusion, but my providers told me to hang in there.
Will I still be able to get pregnant despite having lupus? | Handling the Hard Questions Series
A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource homepage Each...
Why are there so many different kinds of Lupus? | Handling the Hard Questions Series
A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource homepage Each...
How did I get Lupus? | Handling the Hard Questions Series
A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource homepage Each...
The Patient Perspective: The Benefits of Participating in a Clinical Trial | Systemic Lupus Erythematosus (SLE)
It started with one pill a day, then two, and then four. That was followed by a series of injections. And on and on, still with little to no pain relief for my systemic...
The Power of the Team | Lupus
Lupus is a chronic disease that requires long-term care, which can pose a significant challenge to the patient and health care team. There are many epidemiologic,...
The Intersection of Lupus and End-Stage Renal Disease | Systemic Lupus Erythematosus (SLE)
It’s a question that I have considered from time to time in my nursing career—in a patient with severe systemic lupus erythematosus (SLE) who also develops end-stage renal...
Never Forget About the Heart | Systemic Lupus Erythematosus (SLE)
I still vividly remember the day we received the news that WS had passed away at the age of 32. A regular patient we had been seeing for more than a decade, it had been less...
Coming Up with Our Own Recipes | Lupus
Every healthcare provider knows that lupus is the great imposter. One day, it can affect one organ; the next, a whole different system can be targeted. One lupus patient I...
What to Do with a Patient Who Won’t Listen | Systemic Lupus Erythematosus (SLE)
HL was 19 years old when she was transferred from a pediatric rheumatology practice into our adult practice. Her medical and social history was messy. In the foster care...
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