Posts

Meet Lupus Warrior: Monique

In the summer of 2010, I heard three words that would instantly change the trajectory of my life "YOU HAVE LUPUS.” My diagnosis came just over 2 months before my wedding day. My life was filled with complications, trepidation, and confusion, but my providers told me to hang in there.
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Will I still be able to get pregnant despite having lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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Why are there so many different kinds of Lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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How did I get Lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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The Patient Perspective: The Benefits of Participating in a Clinical Trial | Systemic Lupus Erythematosus (SLE)

It started with one pill a day, then two, and then four. That was followed by a series of injections. And on and on, still […]
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The Power of the Team | Lupus

Lupus is a chronic disease that requires long-term care, which can pose a significant challenge to the patient and health care team.
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The Intersection of Lupus and End-Stage Renal Disease | Systemic Lupus Erythematosus (SLE)

It’s a question that I have considered from time to time in my nursing career—in a patient with severe systemic lupus erythematosus (SLE) who also […]
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Never Forget About the Heart | Systemic Lupus Erythematosus (SLE)

I still vividly remember the day we received the news that WS had passed away at the age of 32.
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Coming Up with Our Own Recipes | Lupus

Every healthcare provider knows that lupus is the great imposter. One day, it can affect one organ; the next, a whole different system can be […]
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What to Do with a Patient Who Won’t Listen | Systemic Lupus Erythematosus (SLE)

HL was 19 years old when she was transferred from a pediatric rheumatology practice into our adult practice.
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Putting the Puzzle Pieces Together | Systemic Lupus Erythematosus (SLE).

New patient referrals are always exciting (at least to me). It’s like putting a jigsaw puzzle together.
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Just Say No | Systemic Lupus Erythematosus (SLE).

Hopefully, you are familiar with the patient Bill of Rights that was drafted by the federal government’s Advisory Commission on Consumer Protection and Quality in […]
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The Pitfalls of Fragmented Care | Pediatric Systemic Lupus Erythematosus (SLE)

TK was an 8-year-old female who presented to our pediatric rheumatology clinic about a year ago with a positive antinuclear antibody (ANA) test result (1:320), […]
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Pulling Back the Curtain on “The Great Imposter” | Systemic Lupus Erythematosus (SLE)

“SLE IS LIKE A GREY WOLF LURKING AT THE EDGE OF THE WOODS, WAITING PATIENTLY TO ATTACK AN INDIVIDUAL’S BLOODSTREAM WHEN IT IDENTIFIES AN OPPORTUNITY…”
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It Takes a Team to Beat “The Beast” | Class III and IV Lupus Nephritis

When I met JP, she had just turned 22 years old. She had been living with systemic lupus erythematosus (SLE) since the age of 13, […]
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Don’t Let Age Fool You! | Systemic Lupus Erythematosus (SLE)

I work in a university-based rheumatology practice that includes an inpatient team that sees patients on the rheumatology service or consults on patients admitted to […]
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