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Rheumatology Nurse Practice: What Adult Providers Should Know About Pediatric Rheumatic Diseases

In this issue of Rheumatology Nurse Practice, we’ll review some of the most recent data concerning pediatric rheumatic diseases and their management, as well as offer a variety of helpful tools to help providers ensure that young patients are able to successfully transfer to adult care.
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Posts

Meet Lupus Warrior: Monique

In the summer of 2010, I heard three words that would instantly change the trajectory of my life "YOU HAVE LUPUS.” My diagnosis came just over 2 months before my wedding day. My life was filled with complications, trepidation, and confusion, but my providers told me to hang in there.
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Will I still be able to get pregnant despite having lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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Why are there so many different kinds of Lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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How did I get Lupus? | Handling the Hard Questions Series

A chapter from HANDLING THE HARD QUESTIONS: What Our Patients Are Asking Us About Rheumatic Disease Read and download this booklet on our Workforce Resource […]
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The Patient Perspective: The Benefits of Participating in a Clinical Trial | Systemic Lupus Erythematosus (SLE)

It started with one pill a day, then two, and then four. That was followed by a series of injections. And on and on, still […]
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The Power of the Team | Lupus

Lupus is a chronic disease that requires long-term care, which can pose a significant challenge to the patient and health care team.
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The Intersection of Lupus and End-Stage Renal Disease | Systemic Lupus Erythematosus (SLE)

It’s a question that I have considered from time to time in my nursing career—in a patient with severe systemic lupus erythematosus (SLE) who also […]
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Never Forget About the Heart | Systemic Lupus Erythematosus (SLE)

I still vividly remember the day we received the news that WS had passed away at the age of 32.
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Coming Up with Our Own Recipes | Lupus

Every healthcare provider knows that lupus is the great imposter. One day, it can affect one organ; the next, a whole different system can be […]
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What to Do with a Patient Who Won’t Listen | Systemic Lupus Erythematosus (SLE)

HL was 19 years old when she was transferred from a pediatric rheumatology practice into our adult practice.
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Putting the Puzzle Pieces Together | Systemic Lupus Erythematosus (SLE).

New patient referrals are always exciting (at least to me). It’s like putting a jigsaw puzzle together.
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Just Say No | Systemic Lupus Erythematosus (SLE).

Hopefully, you are familiar with the patient Bill of Rights that was drafted by the federal government’s Advisory Commission on Consumer Protection and Quality in […]
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The Pitfalls of Fragmented Care | Pediatric Systemic Lupus Erythematosus (SLE)

TK was an 8-year-old female who presented to our pediatric rheumatology clinic about a year ago with a positive antinuclear antibody (ANA) test result (1:320), […]
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Pulling Back the Curtain on “The Great Imposter” | Systemic Lupus Erythematosus (SLE)

“SLE IS LIKE A GREY WOLF LURKING AT THE EDGE OF THE WOODS, WAITING PATIENTLY TO ATTACK AN INDIVIDUAL’S BLOODSTREAM WHEN IT IDENTIFIES AN OPPORTUNITY…”
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It Takes a Team to Beat “The Beast” | Class III and IV Lupus Nephritis

When I met JP, she had just turned 22 years old. She had been living with systemic lupus erythematosus (SLE) since the age of 13, […]
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Don’t Let Age Fool You! | Systemic Lupus Erythematosus (SLE)

I work in a university-based rheumatology practice that includes an inpatient team that sees patients on the rheumatology service or consults on patients admitted to […]
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