Posts

The Patient Perspective: The Benefits of Participating in a Clinical Trial | Systemic Lupus Erythematosus (SLE)

It started with one pill a day, then two, and then four. That was followed by a series of injections. And on and on, still […]
read more

The Power of the Team | Lupus

Lupus is a chronic disease that requires long-term care, which can pose a significant challenge to the patient and health care team.
read more

The Intersection of Lupus and End-Stage Renal Disease | Systemic Lupus Erythematosus (SLE)

It’s a question that I have considered from time to time in my nursing career—in a patient with severe systemic lupus erythematosus (SLE) who also […]
read more

Never Forget About the Heart | Systemic Lupus Erythematosus (SLE)

I still vividly remember the day we received the news that WS had passed away at the age of 32.
read more

Coming Up with Our Own Recipes | Lupus

Every healthcare provider knows that lupus is the great imposter. One day, it can affect one organ; the next, a whole different system can be […]
read more

What to Do with a Patient Who Won’t Listen | Systemic Lupus Erythematosus (SLE)

HL was 19 years old when she was transferred from a pediatric rheumatology practice into our adult practice.
read more

Putting the Puzzle Pieces Together | Systemic Lupus Erythematosus (SLE).

New patient referrals are always exciting (at least to me). It’s like putting a jigsaw puzzle together.
read more

Just Say No | Systemic Lupus Erythematosus (SLE).

Hopefully, you are familiar with the patient Bill of Rights that was drafted by the federal government’s Advisory Commission on Consumer Protection and Quality in […]
read more

The Pitfalls of Fragmented Care | Pediatric Systemic Lupus Erythematosus (SLE)

TK was an 8-year-old female who presented to our pediatric rheumatology clinic about a year ago with a positive antinuclear antibody (ANA) test result (1:320), […]
read more

Pulling Back the Curtain on “The Great Imposter” | Systemic Lupus Erythematosus (SLE)

“SLE IS LIKE A GREY WOLF LURKING AT THE EDGE OF THE WOODS, WAITING PATIENTLY TO ATTACK AN INDIVIDUAL’S BLOODSTREAM WHEN IT IDENTIFIES AN OPPORTUNITY…”
read more

It Takes a Team to Beat “The Beast” | Class III and IV Lupus Nephritis

When I met JP, she had just turned 22 years old. She had been living with systemic lupus erythematosus (SLE) since the age of 13, […]
read more

Don’t Let Age Fool You! | Systemic Lupus Erythematosus (SLE)

I work in a university-based rheumatology practice that includes an inpatient team that sees patients on the rheumatology service or consults on patients admitted to […]
read more